Nov 13, 2025 @ 6:16 pm
It was late summer in 2024. I had been having stomach issues, and so I went in to get them checked out at a clinic. I was referred to a gastroenterologist here where I live. I go in, I meet with him, and he tells me to get a colonoscopy (I'm middle-aged now, sorry), so I do. The results come back, and it turns out I have an autoimmune disease called ulcerative colitis. Basically, the way it was explained to me is that my immune system was attacking my own body. Scary stuff, but I get put on medication for it and think that's that.
So it's a few months later, and we're just slipping over into winter. I complain to my coworkers that I think I might have impacted wax in my ear because I'm feeling a bit dizzy. The next day, I woke up with vertigo so bad I couldn't even get out of bed without wanting to vomit. After 2 days of missing work and doing nothing but lying down and trying to keep down water, I went to a clinic. They clean out my ear, give me some motion sickness medicine, and tell me to go to the E.R. if nothing changes in a couple of days. So two days later, on Christmas Eve, I go into the E.R. At this point, I also can't hear anything with my right ear. They gave me a CT scan and told me I have Meniere's disease. I'm told to go to physical therapy, a neurologist, and an ENT. I make appointments with all three, but only one can see me soon. I went to physical therapy for six weeks. He tells me it's Labrynthitis, not Meniere's. My balance comes back, my hearing returns, everything is great!
So a couple of months later, my Primary doctor contacts me. He tells me he saw the CT scan and saw something he didn't like, so he wants me to get an MRI. So, I went and got an MRI. The results come back, and lo and behold, one of my greatest fears had come to pass. I had had a stroke at some point. Not sure when, but we know one thing: I should be having them at my age. So my doctor has me do a bunch of tests to see what could be causing it. All of them come back normal. I never did meet with an ENT, but I did see a neurologist. He says the stroke and vertigo are unrelated. Great. So, I had one last test, I had to wear a heart monitor for two weeks. I wear the monitor, I press a button whenever I feel off, and note what I was doing. I finished my two weeks and sent the monitor in to get the results. About a week after that, on a Friday right after work, I got a phone call from my doctor telling me to go to the E.R., again! So, I go to the E.R. They take a look at the results from the monitor and find out I have a heart block. My BPM was getting down to the 30s while I was awake and even down to the 20s while asleep. This is not ideal.
I wound up staying in the hospital all weekend. No treatment, just monitoring. Eating hospital food and watching reality television. I meet with a cardiologist, who says it could be any number of things, and he doesn't want to jump the gun. After my weekend getaway, I'm told to wear another heart monitor, this time for a month, and this time it does everything itself. It even included a Samsung smartphone to phone home with. My four weeks come and go, and I get a call. Got to come in to the cardiologist. It turns out I'm going to need a pacemaker. My heart seems to be getting slower, and the pacemaker will keep it above 50 BPM, and keep me alive! So, I go back to the hospital, a different one this time. It has been months at this point; we're back in early September, oh, and I forgot to mention that I lost the hearing in my right ear again, but it didn't come back this time. Anyway, I'm told it's a simple surgery, it will be done, and in a couple of hours, I'm going home. Well, that was not true; the doctor wanted to keep me monitored overnight, so I stayed the night. The next day, I'm on my way. I get back to the house, and I try to relax; it's all good. About two days later, I'm having severe chest pains. I went into the E.R., and they told me it was very good that I did, because I was in a bad way. After a lot of testing, they find that one of the cables has come loose and needs to be reattached. I'm going down for another surgery! This time it sticks, but I'm told to take it even easier.
After a couple of weeks, the water seal on the bandage gave out, the day before my follow-up. When I go in, he's not happy. I've spent two months going in for regular check-ups as the wound very slowly healed, with some annoying hiccups along the way. Right around the beginning of October, I started to feel dizzy again. I woke up the next day with vertigo, and even better, the hearing in my left ear was going out. This time I went to an ENT right away; I didn't want to be deaf. I'm told my hearing in the right ear is gone, forever, but that the left ear can be treated with steroids, so that's what I do. At first, nothing happened; my hearing went completely. But then, a little over a week later, I started to hear things again. They're buzzy and are only loud sounds like doors slamming, but I could hear them!
Then we got hit by a high-pressure system and all the hearing was gone. It didn't come back either. I'm currently seeing another ENT, and he has me on a double dose of steroids, both taken orally and being injected directly into my ear through my eardrum. It's do or die at this point, as I'm running out of time. My hearing is not improving, and I'm hearing a lot of tinnitus and “musical ear syndrome” 24 hours a day, so even sleeping is hard. Hopefully, we'll see signs of improvement soon; otherwise, my only options are cochlear implants or just being deaf. He warned me that on average, people only understand 60-70% of words when using implants, and that they'll sound robotic. He also said music is not going to be enjoyable anymore. Both are heartbreaking to hear, but 60-70% of words is a lot better than the 0% I'm hearing now. He also wants me to get an implant on the right side, no matter what happens. So I could end up with two in the end. He also dropped a shocker. The hearing loss could be because of my ulcerative colitis.
It's been really hard, especially recently. I didn't even mention that 4 days before the vertigo hit and took out my hearing, my cat of 11 years had to be put down. I can't seem to get back on my feet and just get back to normal before something else goes wrong. I'm told I may have a blood condition now, too, so I have to see another specialist for that in two weeks. I'm trying to stay optimistic, just face each new challenge as it comes. That said, I'm seeing so many doctors and getting more and more bad news. It's hard. Anyway, that's what I've been up to for the last year. Here's hoping that 2026 is a little better.